Wednesday, January 30, 2013

Well, Weather Has Been Officially Ruled Out; Cali Trip

I've been out here in California for 10 days now and I haven't had any improvement in joint pain. Sigh. I was hoping that the cold Illinois weather was creating some pain. Alas, that is not the case I suppose. I've still been in major pain for the past 6 days. Oh how great it is to have EDS. A part of me isn't surprised though, the weather doesn't help the fact that I have extremely loose ligaments. With all of this pain, my sleeping schedule has been really thrown off.. Hopefully I can get back on schedule here soon. It's been really nice to get away from everything lately. I'm still not sure who my real friends back home are yet but I'm sure I'll figure it out sooner or later. Its pretty sad that I have to question so many friendships because they haven't been here for me I my real time of need. Oh well, life is life. Today my aunt is coming down from the San Francisco area to visit and my big sister, brother-in-law, and my niece and nephew are coming down tomorrow. I'm beyond excited! It's nice to spend time with family (including my dad) who I haven't seen in a while. Hopefully my joints will be cooperative so we can go to the zoo or something fun like that. My second Mayo Clinic trip is coming up soon-the week of February 10th. I have three pages of doctor appointments and physical therapy while I'm there for a week. They're each going to be 10-12 hour days also. I can't believe it's already been over a month since I was there for the first time!

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